Magic 10

It’s a great day despite the overcast skies. Just had a 500-calorie breakfast after my usual second run of the week which is the routine I’ve tried to stick to for months already. You see I have never been committed to running, not to mention waking up early, in my entire life. Now I hit 5 km on average and this week I broke my personal time by clocking below 35 minutes and with a best pace of 5.5. 

I hit plateau in August and since then I decided to take actions. It was a personal challenge I took seriously just to test if everything I read about losing weight while staying fit is one that I can also achieve. So I jumped into the fitness bandwagon–extra weight in tow.

Measurement is key. Everything almost done by the numbers. In fact, I’ve caught myself doing things just so I would know the calories I take. I’ve called waiters to ask how many grams my serving has. I used the kitchen weighing scale more often than before–and was worried when the ones seven segment display broke. I would take time reading nutritional labels at the grocery isle. And I would log on my MyFitnessPal app, if not scan the barcode of any food packaging,  any food I consume every meal. It’s a strict routine but fortunately not in vain.

On this tenth month of 2017 I now hover close to the magic number. I just stepped on the bathroom scale and it shows I’m 0.6 away from being exactly 10 pounds lighter than when I first started my calorie watch regimen and trend shows that it’s a matter of days when I breach 140. 

Controlled descent.

It doesn’t end here though. According to basal metabolic calculator–my age, weight, height all factored in–my ideal weight is 4 pounds farther. That means more restrictions ahead but I know I would hit it soon anyway. MyFitnessPal predicts five weeks which is just a couple before my birthday.  I think that by then I would have earned the right to celebrate it with my favorite 200-calorie Krispy Kreme.

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Mood: 2/10 Honks! (Running light.)

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Balloons

One that got away.

Timehop continues to amaze me with what it can pull up from my past posts years ago today. Some cringeworthy, some funny, some sad, and some funny kind of sad like this one from eight years ago. This was the last balloon I’ve ever bought for Marcus which got away from his grip just before we left MOA. Few years later though we’d buy balloons again for him, this time only red balloons–the symbolic red ballooons we released on our first celebration of Duchenne Awareness Day.

Duchenne awareness day symbol.

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We don’t have balloons today but the significance of this day remains in our hearts as we remember everyone with DMD. God bless all these children and anyone–especially their parents–who commit in making sure this progressive condition doesn’t stop them from enjoying life.

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Mood: 2/10 Honks! (That ribs for lunch…)

Short and Sweet and Sad

Sometimes the shortest discussions are both sweet and sad. Like this one with Marcus yesterday.

“How old would I be in 2025?”

“17”

“Are you still alive by then? How about mommy?” 

#run4Marcus

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He has funny moments as well. Last night he drew something he plans to sell for 200 pesos on OLX.

He calls this the best drawing ever. I did the body and right arm, FYI.

Any takers.

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Mood: 1/10 Honks! (Just ran. Thank God for the recovery.)

Blood Results Are Down

The results of the blood test made last weekend is out and there is good news. Both CK & CK-MB levels are down compared to the previous results. This third test has the lowest so far. The baseline for the normal values vary from one online source to another but I made the graphs below to illustrate how significant the latest results are.

Yes, those are thousand percents versus normal.

According to Mayo Clinic, the normal CK level within the age range of Marcus is 150-499. Using the highest limit, Marcus Creatine Kinase (CK) level is just 2000% this time. Relatively high but it’s way better than the result prior to it.

CK-MB is likewise favorable.

CK-MB level follows suit. To explain what CK-MB is I would liken it to a story most of us have probably heard when we were in grade school. Remember The Leak in the Dike? CK-MB is basically a measurement of a leak which means that ideally there shouldn’t be any level of it in the blood result.  Normal blood test results should  show almost zero.  Mayo  Clinic says that  males would have a  reference  value  of < or =7.7 ng/mL. That’s 7.7 nanograms per milliliter–a lot smaller than a single tear drop. The CK-MB test results we got from Hi-Precision Diagnostic Clinic are in Units/Liter (U/L) and internet sources say it cannot be directly converted to ng/mL unit which means the percentage on my graphs could be off (those are rounded off figures anyway).

My wife and I could only assume which factors attributed to the improvement in the blood test. It was after the second test when the doctor prescribed to double the dosage of the Co-Q10. Marcus has been taken 200mg every night since then together with an intake of Alpha-Lipoic. It was also during this time when Marcus began to have frequent sessions with the manghihilot. The skeptic in me couldn’t see that there’s a direct benefit but there’s nothing to lose. 

And there’s one thing that could highly likely affected the results. The doctor’s advice prior to taking each test was to minimize Marcus’ physical activities and we just realized that sometime in February this year he totally lost his capacity to stand and walk on his own. Since then, he has remained seated either playing games or watching TV. In this case, being immobile was both a bad thing and a good thing. Sigh.

We are yet to see the doctor to interpret the results but for now we are thankful that it wasn’t the result that we were expecting. Please continue to keep us in your prayers.

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Hi-Precision Diagnostics has been accommodating us very well so far. The closest clinic to us now is their branch in Sta. Rosa, Laguna wherein the same professional and friendly personnel took good care of Marcus. Kudos to this company.

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Mood: 3/10 Honks! (If miracles come true…)

 

 

 

The future of mobility

My Facebook timeline was recently full of posts featuring wheelchairs. It made me wonder then if it happens to be wheelchair awareness day. I didn’t bother to check. Today a post from my elder sister shows a concept wheelchair that could make the less mobile live more independently. This one’s the future of wheelchair. The video is on Facebook.

The concept wheelchair extends to hard to reach areas. (Image from Facebook.)

So is it wheelchair awareness season? Mobilityawarenessmonth.com says it’s May but it’s nice to know anyway that there seems to be a growing and sustained awareness on the needs of people who have limited mobility. May we soon see more people-with-disability-friendly places.

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Weather was ideal last Sunday so I grabbed the opportunity to have Marcus take a morning stroll. He enjoyed it.

Summoning his inner peace.
Our morning walk partner. He got hot pan de sal for reward.

Today’s weather, however, isn’t as good as last week’s so as of this writing, past 1 PM, we let Marcus stay asleep. Thanks but no thanks to tropical storm Butchoy that despite having exited out of the Philippine area of responsibility is still making the skies dark every now and then. There’s always a next time.

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Mood: 5/10 Honks! (Cats are dying.)

 

 

Is it Wheelchair Awareness Day Today?

My Facebook timeline shows that a year ago today I posted The Wheelchair Didn’t Stop Them and interestingly other posts related to wheelchairs appeared as I scrolled down. So I am now wondering if it is wheelchair awareness day today. Is it?

Mentalfloss.com reports that Xbox will soon feature avatars of people on wheelchair. I am quite sure that Marcus would be very happy to see such on Xbox though it is more likely going to be for Xbox One consoles only looking at the icon on the flags.

I can’t wait to see Marcus see this appear as one of his avatars. (Image from mentalfloss.com)

The Lad Bible also posted a video from a helmet-mounted camera of a motorcycle rider stopping at a crosswalk to aid a guy in a wheelchair cross the street.

The world would be a better place if we do one small good deed at a time. (Image from The Lad Bible)

There are people, however, who are either ignorant or just insensitive to the needs of the handicapped. Like another photo that Top Gear Philippines posted today about one of those people who learned how to drive but never learned to read the signs.

Which part of no parking is hard to understand?

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Mood: 5/10 Honks! (Storm’s coming.)

Our toilet has transformed into a toy museum

I finally found the right place for me to place a clock inside our toilet. I have been wanting to have one back in Cavite but we just never had the perfect clock and the perfect place. Now, everything fits and one good thing leads to another.

This free clock found its right place.

Thanks to wifey’s eagerness to free up more boxes that are still waiting to be unpacked and sorted she had this very creative idea to place some of Marcus’ toys on the coping inside our toilet. The motorcycle clock is not alone anymore.

Charlie Brown seems amused but Wolverine thinks otherwise.
SpongeBob has his own spot.
And Optimus Prime continues to do his duty together with the Lego cars.
Super Mario tends the farm while the Ninja Turtles keep a close watch.
Batman has become more uptight here though.
I have a feeling Woody knows we did the right thing.
Marcus surrounded by his toys.

 

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Mood: 2/10 Honks! (Time flies, just reached my 5th year at work.)