Last year was crazy so there’s no way to end it but in an equally crazy fashion. Blame it on wifey’s top secret, not to mention pricey, gift to Marcus in the form of a Nintendo switch. His first game was Pokemon but his next choice was surprising. A dancing game.
Another Santa, another baldy guy, made this request happen. Before we know it, Marcus now has in his possession a complete Just Dance 2020 game. And he has evil plans–me dancing with the game.
So hours before New Year struck we got sweaty at home. Sans alcohol, I was dancing to Marcus’ music choices. Been dancing to this game days prior so I felt I was getting the groove, captured one on video, and dared to post it on Facebook. It was ugly but so far it got hits and comments I didn’t expect. Maybe I will try singing next time.
Well I’m also a recipient of wifey’s good year. Composed this post using a nice Redmi 8 Pro. Yup, 2019 was indeed crazy.
Mood: 2/10 Honks! (Will be boarding for my trip to Kansas in few minutes. Will miss home.)
Is there a way to push Christmas back? This has been a question most, if not all, wish would have an affirmative reply. It’s a repetitive thought that even the modern day science still doesn’t have any answer until now. Boo Back To The Future fantasies.
Eleven months ago we all wished it would be December again but here we are all of a sudden almost caught off guard. It the midst of our hectic schedules Christmas was creeping in. Kids like it, we adults not so much.
Personally, this year was busiest I’ve ever had. It was as if everything was overwhelming. This year was the complete opposite of last year. For several months of the first half of the year I stayed longer hours at work. I was in and out of the house like a sleepy cuckoo clock. Thankfully, this last quarters I somehow picked up the rhythm. Then the unexpected changes our client made at work plus the new schedule were blessings in disguise. My team and I are no longer night owls.
In perspective, this is my 47th Christmas and it seems I still don’t know how to handle it as an adult, as a parent. I wish I’m back to being a young kid clueless who really Santa is. Well who doesn’t? I don’t know if I’m doing Christmas right, if I’m playing Santa well. My wife has her answer to that I’m sure.
I don’t want to sound cliche but I just wish that this Christmas will be more meaningful. That behind all the Lazada and balikbayan boxes would be the real spirit of giving and sharing. I still have several days to discover if I’m capable of pure yuletide spirit.
Merry Christmas everyone. Just me stopping by to catch up on my blogging duty.
The Lazada delivery has been more frequent lately and I feel like our house is now its warehouse.
In an effort to save on Christmas packaging, wifey asked me to keep the Lazada boxes so she can use it to repack her gifts.
“If I don’t get any hint that none of those boxes are for me then these empty boxes go to the trash tomorrow,” I said in a jest. She took it seriously though and true enough, few minutes later I received a gift wrapped hurriedly in plain white paper. Thus the Dremel. Thank you female Santa.
Mood: 2/10 Honks! (Hard to be minimalist this Christmas.)
About a month ago I remember Marcus stepping out of his room. It was morning, he just woke up. His smile was all over his face despite still obviously sleepy. He walked right out of his door, hair unruly. He was ready to face the day.
The other day we found the opportunity to grab a bike. Each his own. We had friends though everyone I barely knew. But that didn’t stop us from racing one another. That afternoon was fun even if I almost fell into a muddy patch when I tried to beat Marcus by cutting off the street curb. Boy he pedalled fast, very fast.
Each day I am looking forward to all this. I know these will happen once more, I wish it’d be more often than before. At least in my dreams again.
These scenes have been very vivid lately. Everything was life-like, so real I can feel Marcus’ energy. It was the closest I can get to see Marcus without his Xbox controller, away from his spot in our old sofa. Away from his crippling DMD.
Mood: 5/10 Honks! (Been spending more time with him playing Call of Duty.)
Marcus eventually outgrows his red wheelchair after three years. Last year he started complaining that his knees are already rubbing against the frame especially whenever I take him running with me.
My wife had this ingenious idea to cover the wheelchair’s area with bike frame foam padding. Of course, thanks to Lazada online shopping we acquired it with less effort. But it was only temporary. Marcus is growing fast, not fatter but just taller and heavier. He’s lean. He’d be about 5 feet tall if only he could stand.
So last week, after weeks of waiting for the stock to be available, we met up with someone at the Festival Mall to purchase Marcus’ wheelchair. This time it’s blue, lighter than the old red wheelchair. And it is cheaper as well at P6000 only. Not bad except that the front wheels rub the foot rest when pulled backwards. We can deal with it.
The new wheelchair comes with a lap belt which could come handy if ever we take it out for running. I also realize it will help when Marcus’ core muscles weaken further. Like last week he fell face first after slipping while seated. He got his lips cut but never cried–brave boy. It was scary for us though, signs of things to come. I can only pray the progression slows down.
This week is Marcus’ birthday. He’d be eleven. One day my wife asked, “What’s your wish?” “Last year I wished that I can walk, it didn’t happen,” Marcus simply replied. I looked at my wife faking a smile. His statement stings, we just don’t have an answer.
For now the wheelchair is what we have to make him mobile. We have the same wish for him, maybe dream is the appropriate word. I’m not pessimistic but I have to accept that him being able to walk will not happen in our lifetime. I just hope this new blue wheelchair brings us adventures and better memories.
Mood: 5/10 Honks! (Monday. Marcus’ new therapy schedule.)
Six months later I noticed I haven’t had an entry about our dog. Once referred to as a small rat for being so tiny the first time wifey got it out of a box that was less than half of a regular shoe box into our house is now a grown up dog and we think it is still growing bigger and/or fatter.
Named after Marcus’ pricey smart toy dog he got as a gift while in the US, Shadow soon became house-trained. I’d wish it’s toilet-trained but the fact that it whines whenever it needs to “go” and do it outside, wherever it pleases, is good enough.
It wasn’t all good and easy though having him around. With me especially. I had less tolerance to pet peeves so I didn’t deal with most of it too well unlike wifey. I was strict. However, what I didn’t learn from reading about dealing with pets, I learned from Marcus. Some the hard way.
An animal lover since he was younger, it was his wish to have another live pet at home after we lost our cat, Mittens, in 2016. We tried a turtle and we still have a dwarf hamster. It took a couple more years for us to test if we can have something furry and bigger. Hypoallergenic dogs are out of the question due to costs. Thankfully, Marcus never had asthma attack with the mongrel shedding all over. So far.
Disciplining the dog was always the issue. Marcus is so particular with how his pets are handled. He reminds me when to clean the hamster. He would protest whenever he sees the dog hurt. It was a challenge explaining to him why I need to keep the dog from doing stuffs. Why there should be rules on what the dog can do and can’t do. At least he now knows to keep Shadow at bay whenever necessary. I taught him that a slight tap to the nose works.
Pet peeves aside, Shadow as it turned out is an active mutt. It has short bursts of energy. It is playful at the same time annoying–I was drafting this post with Shadow licking my head, biting my elbows. It plays fetch inside the house, it runs and jumps around which is the very reason I decided to install an anti-tip strap to our flat TV. Marcus loves all these antics.
This is why I now appreciate Shadow more being with us. To see Marcus enjoy the dog’s company makes me think we made the right decision to get a dog and deal with pet peeves in the process. I think I have learned my lessons–continue to learn may be more appropriate. I’d like to believe I’m a better pet owner and father, while I’m at it. We’re now like an ideal family out of Marcus’ Sims game. If only this dog could get a job or at least run along.
Any day out of the ordinary is always welcome. Yesterday was one of those that break routine and I would say it was about breathing fresh air…or hoping to get one.
All schedules aligned, Marcus finally had his chance to undergo the tests that’s been suggested by his doctors years ago. The first one was easy peasy although relatively expensive. The 2D Echo test at the heart station of St. Frances Cabrini Hospital was a breeze. As expected, Marcus finds the procedure ticklish and at the same time interesting. He smiled when the doctor made him listen to his own heartbeat. I smiled when she said Marcus’ heart is normal for now.
However, it was a different story at the pulmonary function test. Marcus had difficulty sustaining at least three seconds of the required prolonged breathing. Perhaps it was stressful for him to have his nose clipped and be asked to breathe normally, then suck air on cue, and then exhale continuously until the technician says stop which by the way is just half of the process. It took almost an hour to prep Marcus and I was eventually advised that we could come another day when he is ready for the test.
Then there’s me at work. Incidentally, I went to the office wearing a shirt with a print that says “Inhale…Excel.” It was a gift from my current boss that I like–vague subject-verb arrangement intended. But the interesting part doesn’t end there. It was also on this same day I went for an interview for another job position. My first this year. Sigh, inhale, exhale.
While Marcus no longer walks and haven’t engaged in something athletic ever since, it doesn’t stop him from understanding sports. For one, I find it amusing that he knows skateboard moves despite lack of experience or even exposure to extreme sports shows on TV. And recently he discovered more on game pass. This past days we’ve been on fairways and football fields. We can now score some pars and have had our winning moments with the Chelsea team. Thanks to Xbox, Marcus can run around sans the need of real life stamina.
Mood: 2/10 Honks! (Fingers and toes and heart crossed.)
Remember that lemon fan? Our weeks of being under the mercy of rechargeable handheld Iwata fans have ended. Yesterday, we went to our first ever S&R buy-one-take-one sale day with the main purpose of getting a replacement for our now useless electric stand fan. Well, one of the main purposes, at least that’s how wifey justified it.
The experience was crazy. I’ve heard of long queues during sale events but I never realized how long is long until I saw the queue of restless shoppers twisting back and forth outside S&R’s Nuvali store like an oversized hungry Slither.io snake. To be honest, I always appreciate Marcus’ wheelchair on days like this. We soon bypassed the regular line and was ushered to the priority lane where there are few patrons waiting to be accommodated, though including some grumpy senior citizens. A compromise I was glad to take.
Entering the store wasn’t the end, however. This time we had to weave in and out and dodge over eager shoppers as they push their trolleys around like zombies out for blood. The line outside the store seemed more civil and subtle. To discover that not every item is buy one take one made me feel more impatient and secretly regret driving despite lack of sleep just to be there.
But wifey was a fighter. All women are, I guess. To them the word sale is caffeine. She was like on zen despite minimal lunch. What was once an empty large pushcart was soon filled. To her wallet’s credit, I noticed that the pack of toilet paper that Marcus and I were kidding her as the second on her list wasn’t the reason her cart was overflowing. Two boxes of stand fans shared space with other stuffs. Minimalism died that day.
Four hours later, we exited the store triumphant. Or more aptly, relieved. The buy-one-take-one smoothies capped our sale day. So are we going to do it again next time? Our answers are opposing. Mine and Marcus obviously on the negative side. But barely 24 hours after, I heard wifey saying she wants a second shot. Fingers crossed, I hope S&R drops prices by half in the hardware and car isles. I’ll be ready by then, hope my wallet is.
Mood: 3/10 Honks! (Can’t wait for this sleepy week at work to end.)