Weather remains bad for almost a week already but so far Santa Claus has braved heavy rains and strong winds, unload some toy cars, and a dominoes set. Marcus must have been that nice.
The rain let up somehow to let my father-in-law celebrate his 80th birthday today and every family member was there except for a few. Marcus too hasn’t dropped by lately due to wheelchair access concerns but come rain or shine we committed to being there. Good job to everyone who made it happen.
Mood: 2/10 Honks! (It’s starting to rain again but we’re warm and cozy at home.)
It was during Christmas dinner last year— over fatty foods, beer, and good company–when I first heard of Timehop and I loved the app since then. It’s the crystal ball of social media. It made me take a look back at whatever I’ve posted online years back. Some cringeworthy, some that I am proud of. This Timehop post is the first on my blog just so I could test how it would look like. See more in the next days.
We must have been so nice that this year our Santa Clauses decided that we personally pick our gifts from where it come from.
While this isn’t my first time to set foot in the US, this is the first time to be with Marcus and wifey and with our Santa Clauses. Needless to say, this is one unusual Christmas for the three of us and we couldn’t thank God enough for this opportunity and for surrounding us with people who support us: people who paid for this trip and even people back home who wished us well.
Merry Christmas everyone!!!
Mood: 2/10 Honks!!!! (Our Garmin watches are waiting to be tested.)
Depends on who you ask, the idea of Christmas could differ. For most kids, it’s all about Christmas socks. For most adults, it’s Christmas sucks and that is just sad. It is why it pays to be a kid or a kid at heart this holiday season. It’s about setting aside all that pride and prejudice that hinder the true spirit of Christmas. It’s about having that innocence, at least for the time being.
Christmas is the perfect time to once again believe in Santa because Santa does exist. Baloney? Grinch, eh? Hear this. You see kids do not have a strong grasp of the origin of Christmas yet and so it takes some creativity to enforce to them the reward system–what one gets when he’s naughty or nice. And this is when Santa Claus comes to the rescue. With his sleigh and reindeer. With Rudolph the red-nosed leader. Remember that even Jesus made use of parables to get his message across. To use therefore a fat bearded man in a red suit who tirelessly shouts ho, ho, ho isn’t really a bad thing. Given the right parenting and faith, kids will soon understand the real reason behind this season. For now let’s allow Santa Claus to fill those Christmas socks.
I have to stressed most kids in the statement. There are others out there with an empty Christmas socks as the least of their worries. Let’s spare a thought and a prayer for them.
Mood: 1/10 Honks! (One more day and Marcus’ dream will come true.)
I like Christmas but I have been anti-Christmas tree. This year I survived another begging from wifey to buy one as, to reiterate same statement I say every year, I find it a waste of money and that I would feel guilty staring at a new Christmas tree when I could have used it for charity or something more important.
I am no Grinch, however. (This is where I expect to see people, including wifey, raise their eyebrows.) I don’t sneak into Christmas trees and secretly breaks it. I am a kid at heart whenever I see the sight of Christmas trees at the malls and someone other houses. I am just not ready, nor could afford, to buy our own.
It does not mean though that I couldn’t or wouldn’t build one. In fact, wifey and I made one again. Thanks to the stash of empty Berocca–more than a year’s worth–canisters I kept up the ceiling a new Christmas tree is born. The past years we built one made of badminton shuttlecocks which we used for more than three Decembers.
We must always remember that Christmas will always be Christmas with or without a Christmas tree. There are always ways to feel the spirit of the yuletide season and the more we understand that it should come from within and shared with the others the better it will be.
Merry Christmas everyone!
Early this year I stopped using Berocca to try out two products being endorsed, forced may be appropriate, by wifey. Berocca was something hard to let go as I personally find it an effective supplement so I had hesitations welcoming Royale’s Spirulina and Performax into my routine. We even had to compare side by side the content of Berocca versus Spirulina and based on supplement facts Berocca wins. Anyway, to cut the story short, I gave Spirulina plus Performax a try and surprisingly I adapted to it. I use Performax when I go to the gym and I can attest to its potency. On top of my other routines I can now do two sets each of 50-lbs dumbbell flat and incline press. Placebo? Who cares.
It’s eight more days before our diet will be tested and fifteen more days before we realize our resolution to lose weight has failed.
Mood: 3/10 Honks! (The gym has not replied, looks like they’re closed when signal # 2 typhoon strikes.)
Well, naughty or nice, Marcus got one this December from Santa Claus. It’s from the Santa Claus who bought the stuffs last year and waited for the right moment when he runs out of idea on what to give next. And it happened.
Yesterday, Santa skipped our home, or didn’t get the opportunity to sneak his way to Marcus’ red sock, so this morning he makes up for it with an F12 Berlinetta.
I don’t know if Santa still has more left but I heard Mrs. Claus said there’s one more. Let’s see what Marcus gets in the next days.
There is good news. Shell Corp. eventually pulled out its Arctic drilling activities after realizing there is no long term potential in the area or probably after encountering radical Santa’s elves who got annoyed by the noise and threatened a lifetime of zero gifts for the sons and daughters of all Shell employees. Now we wonder if we will soon see the return of Lego-Shell partnership. Make the answer ‘yes’ please.
Mood: 2/10 Honks! (The building game begins tomorrow. This isn’t Minecraft this time but it could like a villager’s house.)
The two front teeth had to go. At the age of seven, Marcus’ set of teeth had been all strong, almost perfect, with no sign of degrading until one day my wife found one new tooth coming out behind his upper front teeth. So yesterday, the two front milk teeth finally got extracted to let the new one take its normal place.
Just like his first trip to the same dentist, no tear whatsoever was shed on his first teeth extraction. Props to the pediatric dentist who took time to explain to Marcus on what to expect during the whole process—that’s on top of our similar discussion while on our way to the dentist’s clinic inside the SM mall. It would have been a better if his cashier gave us PWD discount.
The experience was more awkward than painful for Marcus as he wouldn’t want to be seen toothless in school. The good news, or bad news, he won’t be inside a classroom together with his classmates anymore.
It was Monday, last week of October, when he asked us if he could stop going to school. We saw it coming as we observed lately that he finds it more difficult to wake up, let alone rise on his own but we decided to wait until he tells us about it because we can see back then that he still likes being in school despite his condition. While his request made it official that there will be no more sleepy trips to school, for both of us, his teacher and the school’s principal were kind enough to allow him continue studying at home if he wants to. Last week he took his last exam and said goodbye to his classmates. Most of them cried, yes, including the boys and his teachers.
With the absence of worries about grades, something easily took over his study period. Minecraft. Other than his XBox, Marcus now has his Minecraft PC. This PC version of the sandbox game is actually a whole lot better than its XBox 360 counterpart as there are free maps and mods that can be downloaded and installed. Surprisingly, in a matter of weeks since I purchased this game as a reward for his good grades in school, he can already install the mods and maps by himself. He was quick to learn to remember and type the path AppData.minecraftsaves (and mods where he can extract his mods) to install his maps. Well, it lasted until he broke the HP laptop keyboard’s S key, and X, and A, and a couple of other frequently used game keys. So just like his two front teeth, he lost his HP laptop. The latter should teach him a lesson to control his emotions, to take good care of his prized–in this case, pricey–possessions.
To be honest, parenting Marcus is now tougher. A whole lot tougher, trust me. We figured that ‘spare the rod, spoil the child’ approach is now out of the question. Disciplining him has to be done the other way and sometimes it gets frustrating. The heart and muscles of kids with DMD are sensitive and are degrading faster over time. This means that we are doing our best not to upset Marcus. We do our very best not to make him trip or fall, we don’t want him to stress nor hurt his muscles and even his heart and especially his emotions. So how do you parent a child with such condition, one whose body is frail but with a personality so strong? Sometimes I wish it’s the other way around.
If the tooth extraction went well, as if nothing happened, the recent blood extraction result was the complete opposite. While he seem able to take the pain of the pierce of a needle, we soon found out that Marcus’ dystrophin is leaking wildly relative to normal level, and it is worse than before. In April this year we were looking at 15,000 U/L and in October it has elevated to 30,000 U/L. The normal level is 150-150 units per liter (U/L). It’s that bad and the current dosage of CoQ10 and Alpha Lipoic Acid supplements seem to be of no help. If only there’s a way to patch up this one. This Christmas we all want more than just his two front teeth.
We just learned that our version of Mrs. Wilson is sick and in the hospital. Get well soon, from Marcus a.k.a your Dennis The Menace.
Mood: 3/10 Honks! (I don’t know if I should be happy to once again skip the opportunity to watch this Everyday I love You movie with wifey.)