Do you know your Facebook likes?

Image from Google

This week the Zuckerberg finally announced that Facebook users will soon see the button that most, if not everyone, have been waiting for: the Dislike button. I’m one of those who waited, prayed even, so it’s really about time. Once implemented, the new button may be a game changer, it may become a cause for alarm, irrational paranoia and even result to shattered friendship. Just imagine seeing a notification: Anne Nonimous and 9 of your friends dislike your post. Boom. There goes your day, there goes the start of the end. You now find that unfollow button or, worse, you decide to click the ultimate option. Your Facebook account is now ten friends lighter.

But before you burn bridges just because someone disliked one—or more—post you just placed on Facebook, you must try to understand first if the existing Like button is indeed one that shows sincere like. So let’s see some reasons your friend liked your post.

The true like. It is good to know that the world still has people who does not resent your happiness—even in its simplest form, your success and even your daily selfies. Normally, these are your true friends and they are not necessarily your family members or relatives.

The peer pressure like. This happens when someone realizes everyone seems to have liked your post except him. The fear of being ousted from your circle of close friends now takes over and thus he lifts his heavy finger, with heavy heart, and clicks the like button anyhow. Usually this like is followed by a smirk and a raised eyebrow.

The reconnaissance like. Ok, that’s a long word so we’ll call it the spy like. Remember the quote ‘tell me who your friends are…’? This is what we should watch out for as this is normally employed by parents, girlfriend, boyfriend, or spouse who would like to know more about your activities by looking into what your friends say on your post. If you are not aware of it yet, whoever likes your post would be also notified if someone replied to it which means that it will be an open book to everyone who liked the original post. Be ready to be judged by those who use this as an espionage tool.

The clumsy fingers like. Sometimes our fingers would do the walking on its own and would accidentally hit the like button sending an embarrassing notification that you have just liked something you are not supposed to. This may also be referred to as drunken like and should be avoided at all cost. Once your religious mother calls you unexpectedly, then check your timeline if you have clicked on an adult site.

The request-to-like like. My pet peeve. This is similar to peer pressure like but this one comes from specific individuals like a friend whose child joined a popularity contest no matter how undeserving; a colleague who are now into networking and expects you to be a downline; a boss who wants to connect through Facebook.

So by now you must be already aware that even the seemingly harmless Facebook Like button could actually have one or more meaning behind it. Trust me, it is not always a likeable like. Now with the introduction of the Dislike button a new challenge is presented–reading between the lines will become more difficult and subjective. But look at the bright side, who knows, the friends who disliked your post may have good intentions for doing so and may after all those whom you really need to keep.

**

Mood: 2/10 Honks! (Sick but with a document to be signed.)

Our First DMD Awareness Day

As America observes Labor Day some people all over the world celebrate Duchenne Muscular Dystrophy (DMD) Awareness Day and I, my wife, and Marcus were among those who participated in our own simple way. Kudos to wifey, she had a perfect plan on how we should go about it which is by celebrating the day together with people whom Marcus stay with five days a week.  So today, we surprised his classmates during their lunch break.

Wifey and I went to the school with our car and bag packed. We stopped by to meet up with the one who baked the cupcakes, dropped by Greenwich for the pizza, and  we filled our backseat with red and white helium balloons from a small party needs store. In the trunk were our presentation materials—a YouTube video saved on a laptop and a wheelchair.

Questions were all over when we entered the classroom as everyone seems to wonder when they saw me pushing the wheelchair in—the sight of it entering the school gate made waiting parents’, yayas’, and guardians’ heads turn as well. But with most of his classmates already familiar with how Marcus behaves, I soon heard ahhs and ohs as a sign of their realization of  whom the attractive red and blue wheelchair belongs to. Curiosity heightened when I made a short introduction of why we are there. Then I played BrainPOP’s animation about Duchenne Muscular Dystrophy. Everyone was all ears.

The attentive audience.

Reactions differ as the 4-minute video played. Some smiled—after recognizing the similarities of the animated character’s traits with that of Marcus—and some tried to absorb what they have just seen. Marcus’ adviser and the school’s principal were also present and even if they are the only two adults who now begin to understand more about Marcus’ condition made our efforts to spread the word about DMD all worth it.

We capped the celebration by letting the grade one class release the red and white balloons. Everyone enjoyed the celebration so we declare our first DMD awareness day as one mission accomplished.

Saying goodbye to the red and white balloons.

***

My wife and I also took the opportunity to give everyone a heads up that sooner or later Marcus will be leaving their school and most of them cannot believe it. Other kids who are also fond of Marcus were surprised about the news. Sigh.

***

Mood: 3/10 Honks! (Marcus’ 2nd time to shower in the rain.)

Why I will miss the next McDonald’s party

I am not really surprised when we slowly noticed our son’s growing dislike of being in the crowd specifically birthday parties. When we were kids my sister and I hate attending parties but we get dragged to attend anyway. Fast forward to parenthood, I now know the predicament–that invitation us parents find hard to refuse.

So yesterday Marcus and I found ourselves in the the middle of restless kids and parents who tried their best not to lose their sanity or, at the very least, their patience. It’s the 7th birthday of our neighbor’s daughter. FYI, I was able to maintain my composure. No kidding.

The party wasn’t routine though. While the McDonald’s party started slow, posing to be another SSDD, things became interesting maybe in my attempt to amuse myself in the absence of wifey who found a perfect excuse to stay behind–she finally got a new online job contract.

Firstly, drum rolls please, Marcus agreed to eat the cheese on his spaghetti. Pardon me for making it sound like it’s a science breakthrough but it it’s sort of like that. Our kid hated cheese ever since just because he thought it is only for mice–no thanks to Tom and Jerry. Yesterday was his first dare to put grated cheese in his mouth and he gave the thumbs up.

Then I would also say that he is also the reason for another unexpected turn of events. Being the only kid not joining any of the games got the emcee’s attention and so an equally stoic character beside him got picked for a game. My name was called.

To cut the story short, my team lost the game and to make matters worse we were made to dance as penalty. So there goes me do the nae nae. I will likely skip the next McDonald’s party invite.

The orientation of the party hat plus the face are tell-tale signs of his experience. This was before he witnessed me do the nae nae.

***

Thanks Elmer and April for the invitations. Your daughter’s 1st birthday party was Marcus’ first time to attend a McDonald’s party. We will try to attend her debut if we are still around.

***

Mood: 1/10 Honks! (Tatay sounds good, the house plan looks almost perfect.)

What writing exercises reveal

It is perfectly normal I guess for kids to show and express their influences in school. For them to see that their heroes or people or things they admire are with them while in class could lessen their anxiety or better yet inspire them to focus on their activities while seated in front their teacher. It must be the very same reason they want bags and matching pencil cases that have the images of their favorite superhero or even favorite doll. “I will be the next Ant-Man.” “I will grow as lovely as a Bratz.” We’ve been school kids before so we should understand.

Drawings would also reveal what is on their minds, what they imagine all the time. And even words they write could show what or who their influences are. Case in point is what we discovered just recently from Marcus’ Mastering Handwriting book.

The current favorite–Batman.

Ok, that’s fine. We know Batman, kids love Batman. So B for Batman is a no-brainer. Back in the days he would have written Ben 10, but he got bored of it.

How about H? Name a character whose name starts with a letter H? Can’t recall one? Hawkeye? Hellboy? Hulk? Nope. Harry Potter? Eww. Oopps, pardon my manners.

Neither Hawkeye nor Hellboy, not even Hulk made it. Hitman did.

Yes, Hitman made it on Marcus’ H list. This is despite the fact that I have already kept his Hitman Xbox CD and he never saw any of it after the first 10 minutes of that game after I learned that the Hitman is fond of pianos except that he is more interested in the use of its one wire–one wire is good enough to play his death tune. But Marcus soon heard about this character again from the trailer of the movie Hitman: Agent 47 and its cinema posters in the mall didn’t help us in hiding the character’s existence. So that writing exercise must be a subtle request to allow him to watch the movie and had it been PG13 I would have given in. However, with its R13 movie rating means that it is a lot more than just piano wires and its unconventional use. So yes, you could take a breather now, we are responsible parents after all. And for that writing entry, we have asked him to remove it. The word ‘hit’ would be good enough for now.

***

Again, no Hitman. We watched Pixels. It is his first discounted movie.

***

Mood: 4/10 Honks! (There’s a queue on the treadmill, all weights today.)

Here Comes Frosty the Snowman

 

Image by downtowncovington.org

Everyone could already smell the yuletide season. It is almost here. Well, at least for most Filipinos who start to feel Christmassy as soon as we flip our calendars to the first ‘ber’ page of its year. Yes, it’s as if  September is just a blink away from the time we celebrated the New Year’s Eve. Time does fly. But this year I bet that Marcus and I were ahead of everyone else.

By the early days of August our car’s CD player has been on repeat mode. Marcus’ latest discovery was the repeat track menu. I had to reveal it to him after I got tired of pushing the back button to play Bebot over and over again for him as for some reason he became a sudden fan of Apl.de.ap which makes me wonder if his seemingly serious resentment of the Chinese activity in the West Philippine Sea influenced him–surprising for someone his age. Things changed though when he brought back home the BEP CD so that he can play it on our audio player. Since then the next most-abused disc is the one by Alvin, Theodore, and Simon. Yup, you got it, it’s the Chipmunks and their Christmas song album. The unmistakable voices of Alvin and the Chipmunks played in our car—in the middle of August, every day, every trip to school, every time he gets to be in the front passenger seat. And among the Chipmunks songs, Frosty the Snowman became his favorite driving song.

I have tried but my negotiation skills were of no use and so to join the band, so to speak, I would sing the the song while driving–my attempt to annoy him. So far Frosty  the Snowman continues, either I can now sing like a Chipmunk or he just opts to ignore my strategy. Chances are, it is the latter.  To concede, and to share my last song syndrome, let me share the song’s lyrics (thanks to Metrolyrics.com).

Hey, fellas
Why don’t you tell the kids about your ice cold friend?
Alright

Frosty the Snowman
Was a jolly happy soul
With a corncob pipe
And a button nose
And two eyes made out of coal

Frosty the Snowman
Is a fairytale they say
He was made of snow
But the children know
How he came to life one day

There must have been some magic
In that old silk hat they found
For when they placed it on his head
He began to dance around

Ohh, Frosty the Snowman
Was alive as he could be
And the children say
He could laugh and play
Just the same as you and me

Frosty the Snowman
Knew the sun was hot that day
So he said, “Let’s run
And we’ll have some fun
Now before I melt away”

Down to the village
With a broomstick in his hand
Running here and there
All around the square
Saying, “Catch me if you can”

He led them down the streets of town
Right to the traffic cop
And he only paused a moment when
He heard him holler, “Stop”

Oh, Frosty the Snowman
Had to hurry on his way
But he waved goodbye
Saying, “Don’t you cry
I’ll be back again some day”

Thumpety, thump, thump
Thumpety, thump, thump
Look at Frosty go…”

Frosty the Snowman ends with “And he waved goodbye, saying, “Don’t you cry I’ll be back again some day” but thanks—or no thanks—to the stereo’s repeat track feature, Frosty returns faster than we realize that it is September all over again.

***

There’s another thing that makes us one more step ahead of the others—our Christmas lantern. Kudos to procrastination, our lantern and the Christmas bulbs we placed outside our house are still out there since last year. I really can’t wait for September to start so that we won’t be getting weird stares from our neighbors unlike when we accidentally hit the lantern’s switch in the middle of March.

***

Mood: 3/10 Honks (They should have shown Pixels in Christmas.)

Yin and Yang

There is always yin and yang, there is–or should be–always balance. This is the message that I realized from just two simple stickers.

On Sunday I got a break from the weather and was able to finally give the car a wash and wax session. And with glasses all cleaned of bugs and sap and dust and bird droppings I was able to place the sticker that will soon make our vehicle, hoping that considerate people still outnumber those who aren’t, to be a legit occupant of that PWD (People with Disabilities) parking slot. (It should be noted that this sticker is meant to complement the government-issued card we got recently.)

PWD sticker, wheelchair, disabled parking
His sticker.

Unexpectedly, after I was done with my workout this morning the attendant gave me their gym sticker. This surely will cause some raised eyebrows at the parking area but I’m sticking it anyway.

Gym sticker, gym membership
My sticker.

So yes, simple things could remind us that there is yin and yang. Life is balanced. Life has opposites. Sadness and happiness. Sickness and health. Father and son. Life and death. Oppss. My avid readers–all five of them–said that my recent posts have been dark and sad so I’m striking out the last juxtaposition. Cheers.

***

Discovered today that I can run on the treadmill and read an ebook at the same time. Had an interesting 5K, thanks to Angela Marson’s Silent Scream. Yes, been a fan lately of discounted Kindle books.

***

Mood: 3/10 Honks! (What do ‘ber’  months has in store for us?)

Life And Death And Marcus

At some point of their growing up years kids will have so much range of ideas running inside their heads. During this time their questions would reveal their developing perspective of life…and even death.

Like two weeks ago I had weird and unexpected questions from Marcus. Passing by this one establishment along our usual route to school he asked, “Daddy, what are those boxes for?” He was pointing at the funeral parlor’s caskets on display. “That’s where the dead bodies are placed,” I said plainly with the hope to dismiss the topic once and for all.

But obviously he is not done yet as another day came and this time his queries were more deduced. “Daddy, when am I going to die…will everyone die?” Trying to be subtle I answered, “Yes, when people get old, we will eventually die.” Then he followed up, “So why is lolo ‘hel still alive?”

For some strange and creepy coincidence my 80-year old father had a close call about a week after that discussion when he slipped and fell hard one rainy afternoon. Thankfully his tubes have been removed just recently and at this moment is recovering in a hospital.

Then the other night wifey told me a story. She said that while preparing to go to sleep, out of nowhere, Marcus told her, “Mommy, when I’m old and gone, please name your new baby Marcus. That way, he will still be me. I would still sleep beside you, I would still be able to check my toys.” It was something that gave me mixed emotions. For one, I find it funny as it shows his innocence, his current lack of grasp of life’s timeline. The freaky part is that it made me recall Robert De Niro’s Godsend. The sad thing is that it could be imminent and when that happens there will be no new Marcus. Probably just me and wifey and his toys.

I wouldn’t wonder though if Marcus still does not fully understand life and death because even adults do not. Life is so complex that we won’t know all about it until we have lived it to the fullest. Death will remain a mystery until have experienced or got closed to it. That’s life, that’s death.

***

He now has a PWD card. The bright side, he gets to watch free movies every week among other benefits.

***

Mood: 2/10 Honks! (God has been testing us and so far has not failed us.)

Why is he rich?

Life is never dull especially with kids around and their growing curiousity of the things around them. Like today while on our way back home from school Marcus had this interesting question:

Marcus: Daddy, why is Manny Pacquiao rich? Is he a criminal?

Me (Thinking): He will commit his first crime once he runs for senator. Heaven forbid.

Of course, I explained how Manny got his wealth.

***

Mood: 2/10 Honks! (I only I were a sponge that could absorb his dystrophy.)

 

 

We got new wheels

The information is overwhelming and the more we learn about muscle dystrophy the more we begin to embrace the challenges that need to be dealt with. Besides the anxiety that we feel every single day when we send Marcus to school, thinking what if he falls in the class, in the playground, what if he gets pushed around and so on, we also have to start recognizing the behaviors that are associated with people with DMD.

Tell-tale signs that we once dismissed as just part of a growing up kid’s life are now becoming to make sense. These signs we realized just now are psychosocial issues commonly exhibited by people with Duchenne Muscular Dystrophy or DMD.  According to www.parentprojectmd.org, there are things to watch out for:

  • He has delays in language development or problems with communication.
  • He has difficulty interacting with others and/or making friends.
  • He is often angry, argues a lot, or is very inflexible about what he wants to happen.
  • He is forgetful or absent-minded, or has difficulty paying attention.
  • He is very quiet and withdrawn, and prefers to be by himself.
  • He is very fearful or anxious.
  • He often has a negative/pessimistic attitude or says bad things about himself.
  • He has difficulty learning new academic skills or earns poor grades.
  • He has rituals or routines that have to be followed in a particular way.
  • He has difficulty sitting still, is impulsive, or very impatient.

(See article here.)

All these are behaviors that we have observed from Marcus even before we learned he has DMD (likely). There are two traits, however, that are just starting to come out: difficulty starting to learn new academic skills and saying bad things about himself.

His first wheelchair. Picture taken inside a Healthy Options store where we bought CoQ 10.

While there were some challenges in school, so typical of a preschooler, grades weren’t among our problems. In fact, Marcus finished his three years in preschool being on top of his class, albeit a small one. The possible reason he is now beginning to fall back is because we have stopped putting some pressure on him to excel in school. We learned that writing alone could stress out the muscles of those with DMD which perfectly explains why Marcus complains getting tired after writing for a couple of minutes.

Our trip to the doctor just this last Thursday also confirmed that Marcus would soon find writing using a pen or pencil a hard task to accomplish. She cites one patient that have to eventually ask to be permitted to write on a tablet instead on paper while in school. She said that dropping out of school due to difficulty in catching up with the other kids is a possible scenario.

On this same visit we finally had all the recent tests interpreted. The one that struck us the most is the CPK result. Marcus’ blood test was off the chart. According to the doctor, there is so much dystrophin wasted by Marcus’ system as seen from his CK reading—his was around 15,000 when a normal range should be around 150 units per liter. It was that bad. For now, the doctor prescribed a couple of supplements that should help somehow balance our kid’s system. He is to start taking Coenzyme Q10 for his heart and Diamaxin for his muscles. In 3-6 months, we will see if these drugs will improve something.

He can still dance but just briefly. (Photo taken inside SM South Mall after a trip to the nearby UPHMC.)

***

 Mood: 5/10 Honks! (Off to Batangas, first time to check the lot up close.)