It’s been my dream to do something physical with Marcus, run with him. But his wheelchair sets some limits among others. Weather and outdoor condition are other factors as he’s had history of allergic reactions.
Yesterday seems to be the perfect condition although it was a bit windy late in the afternoon. We set off anyway, stepped out of the house with my running shoes and Marcus looking forward to see the goats along the way.
I ran and pushed at the first kilometer until the goats appeared. Then it was mostly run-walk from then onwards. I let Marcus cherish the moments to see nature and animals beyond Ultra HD 4K.
If only we had this Adaptive Mobility Freedom Push Chairswhich I saw first on Facebook page of Athletes in Tandem. This push chair would allow me to run with Marcus better and safer. His current wheelchair rattles and it poses a challenge when going uphill thus the need to take extra care not to over tilt him backwards. The mobility chair’s price is stiff though at $900 excluding shipping since it would come from USA. Maybe soon.
We covered seven kilometers yesterday so this red wheelchair is good enough for now.
Mood: 2/10 Honks! (Today’s agenda: Learn the floss. (No) thanks to kid’s Fortnite game.)
The just concluded long weekend due to the holy week was worth it. Didn’t get us far from home but it gave me a chance to just bond with wifey and Marcus. This video of the goats playing around and showing off to Marcus was captured on a Good Friday at the first stopover on our attempt to get closer to Mount Makiling. We live nearby so no big deal but take note that Marcus is in a wheelchair.
Mount Makiling is one of the regular Holy Week destinations for those who want to make their own sacrifices or for mountaineers who want to climb something challenging but not far from the city. The last time I was up there was about 20 years ago before I got married and when a good stretch of the road to the mountain wasn’t paved yet. Now it’s a bit wheelchair-friendly.
Next time we will try farther. And yes, next time we’ll wear something warmer.
Mood: 2/10 Honks! (Just a day at work then another off for me.)
Just saw this one on Facebook and it made me sad yet at the same time happy that such campaign to let everyone know how a simple gesture could go a long way. This is something any parent with a kid in a wheelchair would appreciate big time.
Also on Facebook, Lad Bible posted a video of a guy in a wheelchair doing dips in a gym. Looking at the weight he has to deal with is like me and Marcus combined. Dips has been one of my favorite routines since I started working out. I still do a variation of it at home and Marcus’ therapy session also includes same exercise though assisted by physical therapists. He just finished his second day today.
What seems like in a snap of a finger, we find ourselves staring at 2017. Now we once again wonder what this new year has in store for us with all hopes up that it would be better than its preceding year. In our books, 2016 is hard to beat especially that its last days ended with a bang. But after three weeks of living the life in the land of milk and honey, our life goes back to normal. We have returned home, we move on.
Yes, we move on. One tall order after one unique travel experience. In the next days we merge back to the rat race–like it or not. In Marcus’ case, however, moving on is a pun and at the same time a big dream. And time is of the essence. This year we need to execute what we have regularly discussed between pauses during our American adventure. Our good hosts, my sister and her hubby, want to see Marcus undergo the next phase of DMD testing. They pledged to support it.
To say we were happy at their commitment would be an understatement. DMD is one of those medical conditions that is expensive to deal with despite the uncertainty of success. With the much needed support we can now proceed and see if the available DMD drug in the market would be of benefit to Marcus. So as early as this January we’ll be busy. It’s time we see the doctor again. Fingers crossed.
We continue to realize the challenge of travelling with someone in a wheelchair. Not that we are complaining but its a struggle we have to face. This is why I didn’t have any issues staying at my sister’s home and just enjoy time with everyone. I just know that Marcus preferred it that way too.
Even within the confines of the house there’s always something to keep us occupied anyway: gym, pets, TV, toys, food. They are also fond of non-smartphones games like Uno and Jenga. And it was where I learned my second card game (Trump cards is first) while Marcus proved he can play the latter.
Marcus once mentioned that he has seen how Jenga is played but we never saw him play the actual game not until this trip. To the surprise of everyone, he was a natural. He picked Jenga blocks on his own although I carried and assisted him to be able to place the blocks when the stack got higher. His dexterity to handle the blocks gave me some sort of hope. It proves that after all his remaining muscle functions may be preserved somehow. Let’s see.
Mood: 2/10 Honks! (Now using Marcus’ HP PC which we fixed ourselves. Thanks to the male Santa.)
It’s a bird, it’s a plane, no…it’s a wheelchair. Yes, the long wait is over and Marcus and his wheelchair is flying against all odds, against weird baggage weight requirement.
Our plan to pack light, just a carry-on bag and one for check in, seems like a bad idea. We didn’t know that what works in domestic flight won’t do in international. We discovered that the weight requirement is strictly enforced per bag so we have to summon our packing talent, or the lack of it, in a whim. It was a good thing we brought one extra backpack to distribute the excess stuffs. We eventually found ourselves waiting to board the aircraft, tired, hungry, sleepy but we made it.
Mood: 2/10 Honks! (That expensive jumbo siopao made my day.)
My Facebook timeline shows that a year ago today I posted The Wheelchair Didn’t Stop Them and interestingly other posts related to wheelchairs appeared as I scrolled down. So I am now wondering if it is wheelchair awareness day today. Is it?
The Lad Bible also posted a video from a helmet-mounted camera of a motorcycle rider stopping at a crosswalk to aid a guy in a wheelchair cross the street.
There are people, however, who are either ignorant or just insensitive to the needs of the handicapped. Like another photo that Top Gear Philippines posted today about one of those people who learned how to drive but never learned to read the signs.