It’s been my dream to do something physical with Marcus, run with him. But his wheelchair sets some limits among others. Weather and outdoor condition are other factors as he’s had history of allergic reactions.
Yesterday seems to be the perfect condition although it was a bit windy late in the afternoon. We set off anyway, stepped out of the house with my running shoes and Marcus looking forward to see the goats along the way.
I ran and pushed at the first kilometer until the goats appeared. Then it was mostly run-walk from then onwards. I let Marcus cherish the moments to see nature and animals beyond Ultra HD 4K.
If only we had this Adaptive Mobility Freedom Push Chairswhich I saw first on Facebook page of Athletes in Tandem. This push chair would allow me to run with Marcus better and safer. His current wheelchair rattles and it poses a challenge when going uphill thus the need to take extra care not to over tilt him backwards. The mobility chair’s price is stiff though at $900 excluding shipping since it would come from USA. Maybe soon.
We covered seven kilometers yesterday so this red wheelchair is good enough for now.
Mood: 2/10 Honks! (Today’s agenda: Learn the floss. (No) thanks to kid’s Fortnite game.)
As parents, we play different roles. At some point we are either any or a combination of being a superhero, a soldier, a doctor, a nurse, a driver, a bank teller, a teacher, a preacher, a clown, and a friend. Our children expect us to be as flexible as Mr. Fantastic and our children keep a keen eye on us day in day out. What we do is what they would become.
It is imperative that we pay attention to our actions. The sooner we realize that we have greater responsibilities the moment a child becomes part of our lives, the better. Parenting is complicated, I know, and it is normally easy on theory but a whole lot different when everything happens right in front of your face. Kid cries, kid wants food, kid poops, kid pees, kid makes a mess. And kid gets sick. And some kid, later on, would have special needs.
There is no turning back. Hard truth. It takes someone strong, wherever that strength may come from, to say “I can do this.” A good parent commits, a good parent loves…without condition. Child first, everything else takes a backseat.
It took some time to get my acts straight when it comes to alcohol. Several times I was behind the wheel under influence with Marcus inside the car, I had days I missed getting him to bed because I can barely hold my own, and there was one day I missed him blowing his birthday cake because I’ve passed out. Been that bad father.
Honestly, I somehow miss drinking with friends. Those days when cheeks would get warm and tight. Those days when eyes drop halfway, then the world starts turning. Those days when inhibitions are lost and words come out freely and without care. All for the heck of doing it. In vino veritas. But perspectives and priorities changed.
I haven’t stopped drinking entirely but since the red wheelchair came the drinking became less and lesser. Occasional isn’t even a close definition. I could count with my fingers the number of times I went drinking especially last year. Running and working out helped me avoid the urges. (FYI, six bottles of low-calorie beer is equivalent to one meal or a third of a day’s calorie allowance. That’s excluding finger foods!)
I am alcohol-free, almost. I’ve made myself 24/7 for Marcus as much as possible. I’m his fireman who would jump the pole and would be there for him in no time. I would only drink if Marcus is not around or if I know Marcus’ needs are all taken care of. I think I could now qualify as best parent yet not. Others have far challenging stories. So to all of you out there who continue to make sacrifices and continue to love their kids with special needs, hats off to you. Happy Sunday.
Timehop continues to amaze me with what it can pull up from my past posts years ago today. Some cringeworthy, some funny, some sad, and some funny kind of sad like this one from eight years ago. This was the last balloon I’ve ever bought for Marcus which got away from his grip just before we left MOA. Few years later though we’d buy balloons again for him, this time only red balloons–the symbolic red ballooons we released on our first celebration of Duchenne Awareness Day.
We don’t have balloons today but the significance of this day remains in our hearts as we remember everyone with DMD. God bless all these children and anyone–especially their parents–who commit in making sure this progressive condition doesn’t stop them from enjoying life.
The just concluded long weekend due to the holy week was worth it. Didn’t get us far from home but it gave me a chance to just bond with wifey and Marcus. This video of the goats playing around and showing off to Marcus was captured on a Good Friday at the first stopover on our attempt to get closer to Mount Makiling. We live nearby so no big deal but take note that Marcus is in a wheelchair.
Mount Makiling is one of the regular Holy Week destinations for those who want to make their own sacrifices or for mountaineers who want to climb something challenging but not far from the city. The last time I was up there was about 20 years ago before I got married and when a good stretch of the road to the mountain wasn’t paved yet. Now it’s a bit wheelchair-friendly.
Next time we will try farther. And yes, next time we’ll wear something warmer.
Mood: 2/10 Honks! (Just a day at work then another off for me.)