Why I am For Embryo Editing

There are things happening around us that we tend to ignore and it is perfectly normal. We only care if something affects us–the economy, gadgets, car models, fashion, entertainment, career, etc. In our health-conscious world, we also would talk about fitness in general. Everyone considers activities like going to the gym, start running, and acquiring that first bike. The concerns of the average Joes, at the very least.

If you belong to this crowd, then you are lucky. It means that you are gifted with a sound mind and body that allows you to be involved in normal physical activities.

But not everyone can be physically active,  let alone do simple tasks. For some people, simply standing up or talking small steps are challenging enough. Like children with muscular dystrophy, specifically Duchenne Muscular Dystrophy or DMD.

Children with DMD are innocent victims of a genetic disorder. According to online resources, DMD is caused by a damaged or mutated dystrophin gene on the X chromosomes resulting to the muscles not to develop properly and, worse, to degrade over time. DMD will cripple anyone at a very young age.

So what if science can correct this problem? What if there is a way to edit the genetic code so that a normal baby comes out. Would you approve? Do you think God will approve?

Yes, there will always be questions regarding the ethics of tweaking the genes. Lots of it actually. The fear of having only perfect babies will always linger. The thought about something similar to the Nazi’s genocide happening all over again or even imagine the fictional movie Gattaca becoming real would surface. Will this breakthrough eventually result to inhumane elimination of the weak and anyone with inferior genes? What a scary thought, right?

There are chances though that some are willing to take. These are the people who are in this situation. Those who are, and their loved ones, inflicted with a disorder that science currently have not resolved. They are people who are the intended beneficiaries of the cure that are still in the works.  They are the ones who, while scientists experiment with animals and while lawmakers debate on ethics, continue to suffer and with time working against them.

It won’t be a big surprise though to learn that not everyone will agree to embryo editing. For one, this may contradict religious beliefs as it could be seen as playing God. There will always be people who would not want to oppose the will of God. There are people who believe in nothing but divine miracles. But what if embryo editing is the miracle that we have been waiting for?

For me, this is a miracle. It may be selfish for me to wish Marcus could have avoided DMD, as the doctor has recently diagnosed, had embryo editing been available before and to not think about the long-term impact of the technology in case some scientists dare to push the envelop. We are that desperate right now and our immediate concern is for a cure to ultimately produce healthy babies as well as cure those with genetic disorder so that they could be just like most of us, regular Joes.

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Mood: 4/10 Honks! (In Batangas, Marcus with his tablet.)

When a Macklemore Song Becomes a Sad Song

…Can we go back, this is the moment

Tonight is the night, we’ll fight ’til it’s over

So we put our hands up like the ceiling can’t hold us

Like the ceiling can’t hold us…

These are a couple of lyrics from the Macklemore song Can’t Hold Us and it is one of Marcus’ favorite songs. It played when I was warming up in the gym yesterday. It was supposed to pump up my mind and body as it always does. It is just like its effect on Marcus every time he views this one YouTube montage of Halo. He goes crazy, he dances. Yes, it is a song that he introduced to me and I have come to loved as well.

Saturday’s gym session, however, was different.  I was pedaling while I was holding back from crying. I could have let go of my tears and made it mix with my own sweat which are starting to drip on the rubber floor but I couldn’t. I’m in a gym. Men do not cry inside the gym unless maybe they got hit by a dumbbell.

The song eventually ended and I was able to move on. It was so far the saddest stationary bike warm up I ever had but I know that I will have the same feeling again in the next days if I hear the same song again. It would make me imagine the Halo characters in that montage where all are mighty and brave, all are strong and muscular, everyone fast and invincible. Marcus likes them. Marcus wants to be one of them.

Last Friday we learned that this will not happen.

Our second visit to another doctor this week made us discover that Marcus all along has Duchenne muscular dystrophy (DMD). This condition is a genetic problem that results to progressive muscular wasting that causes all the muscles—the heart included—to fail at some point. What got us so devastated was when the doctor confirmed what I have read from the article that wifey posted on my facebook private message—DMD does not have any cure for now.

Muscles of people with DMD weaken over time. We now understand why Marcus at age seven still cannot run just like the other kids. He cannot climb stairs. He cannot stand up on his own. He falls for no reason. And it is not his fault—never was. I now feel guilty expecting too much from him and forcing him to run just so he becomes the hero he wants to be. I have required him to run inside the house every time his Xbox timer expires. We once all thought that he just lacks exercise.

Our awareness to his condition hit us. Suddenly everything changed–our plans, our focus, our dreams, our faith. I know things will be different in the next days, in the next years. But DMD can’t hold us. Should not hold us.

…Return of the Mack, get up!

What it is, what it does, what it is, what it isn’t.

Looking for a better way to get up out of bed…

 

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Lyrics from azlyrics.com

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Mood: 9/10 Honks! (Lord, make us strong.)